Rare Disease Day

What is Rare Disease Day?

Rare Disease Awareness Day, also known as Rare Disease Day, is an international observance held annually on the last day of February. The event aims to raise awareness about the challenges faced by people with rare diseases, their families, and the organisations that serve them. Rare Disease Day also highlights the need for increased research and funding to develop treatments and cures for rare diseases. The day's goal is to bring attention to the impact of rare diseases on patients and their families and to advocate for more significant support and resources for the rare disease community.

What can we do on Rare Disease Day?

There are several ways to participate in and support Rare Disease Day:

• Raise Awareness: Share information about Rare Disease Day and the challenges faced by people with rare diseases on social media, through blog posts, or by organising events in your community.

• Show Support: Wear a ribbon or other symbol to support the rare disease community and help raise awareness.

• Donate: Support organisations that work to improve people's lives affected by rare diseases.

• Participate in Events: Attend local or online events that support Rare Disease Day, such as walks, runs, or other fundraising events.

• Please contact your elected representatives to advocate for increased funding for research and treatment of rare diseases and better access to medical care for those affected.

• Get involved: Volunteer or donate time, skills, or resources to organisations that support people with rare diseases and their families.

Remember, every action counts and every effort made to raise awareness and support the rare disease community can make a difference in the lives of those affected by these conditions!

Do you know if anything happens near me?

Check here: https://www.rarediseaseday.org.